Our daughters Kati and Carli were diagnosed with Friedreich's Ataxia. Having the disease for several years now, they are ready for a cure or at least treatment. With many other brave people who have FA they have taken on the tasks themselves to HELP find that treatment/cure. They have participated in studies and have been to several fundraisers. This is considered an orphan disease, since there are about 5000 people affected with FA. So please, we need all the help we can get. If you can't ride think about a donation. Together we can defeat FA. Thank you!
This is what Paula Hook wrote for two of her beautiful daughters. She never expected her girls to get this awful disease. It is affecting her family and there is no cure nor a treatment to make them better. Look at them. Let your heart speak and help them raise money to
get a cure for FA.
Paula and her husband Tom are wonderful, generous people. They are a loving family and very much involved. They raised three beautiful daughters and they are crazy about their grandchildren. Living in La Porte, Indiana, Chicago is not that far off. The Chicago Ride for Ataxia is very important for them. Raising money is never easy. If that money could help find a cure to heal their girls and so many others out there with FA, they would be the happiest people ever. Please help Paula and Tom raise as much money as possible, so they can guarantee their daughters a quality life..
No comments:
Post a Comment